Dear Friends and Family
Just wanted to drop you an update as I am feeling good today. I came through Cycle 3 of my treatment ok. Each time we go through this, Kath and I have a better understanding of how to regulate all the side effects with the medications they’ve prescribed. We did a little better this time than last, but unfortunately it still takes me 4-5 days to fully work through the chemo. Hopefully, I can shave a day off that recovery window by the time we get to Cycle 4 (Feb 28). Met with the Doc last week and everything is on target so far. Digestion is better and the pain is down, so those are positive signs.
You all have done wonders to keep my spirits up and make me smile. My buddy Nathan has reminded me that things could be worse :o), Karen has encouraged me to finally get that Fedora I’ve always wanted, and your thoughts and prayers have given me peace and confidence that, whatever happens, things are unfolding as they should.
We’ve received so much support from such wonderful people, it is very humbling. Wendy filling in twice to make sure my nurses and recoveries are “up to standards”, Mike and Paulette have taken me to medical appointments, as has Ernie, who split a pizza with me and shared old stories. Phil has given up, for now, on getting me back to the clarinet, but he is still coming over on Wednesdays to crack me up and to encourage me to get better, – i think he needs help putting up a new wall at his place :0). Lee Ann, Agnes and the Utilities team filling my house with melodies I won’t forget…Carl’s generous reminders that I am never alone… Linda’s care package of wonderment…
So manny wonderful dinners and baked food – Mike’s chicken soup; pies and soups from Shelly; a shmorgasborg of dinners from the Park and Rec Team; Marsi’s wonderful bread (we are on the second loaf); Mom’s fideo (soul food) and muffins… all the little dishes dropped off to tempt my appetite – It has really helped my efforts to keep the weight on, though that is still a bit of a struggle for me.
I still spend most of the days resting, reading and finding little things to do. You know, its a little funny, but I find myself thinking about doing those little things I used to do growing up but abandoned because I “out grew” them. I have always loved playing board games and find myself rummaging through old boxes of games long put away. Or getting out old model kits I’ve had for so long and always meant to get to when I felt like feeling like a kid again. As I look out my window and the sun streams through an old tree in my backyard, I think that perhaps we should hang on to these frivolities of youth a little more than we do. They made us happy for a reason – they gave us a smile inside and for some reason, some of us, as I have, put them aside. Well, I think I will break out that old ME109 WWII fighter plane and see if I can still follow some directions without getting cement everywhere. And I think you all should, too. Take time for you – do something that made you smile, made you happy when the day was young and dusk was far away. Pull out those oil paints or watercolors. Dust off that woodworking kit. Break out the needlepoint and thread. Make some gem stone jewlery or colored glass art. You deserve it. And when you do – tell me about it. It will make me happy, too.